IDEAL2 study

The aim of the IDEAL-2 programme is to provide evidence about living well with dementia, service use and areas of unmet need for people with dementia.

It will build on the IDEAL cohort of 1,550 people with mild-to-moderate dementia and 1,286 carers, interviewed initially between 2014 and 2016 and followed up 12 and 24 months later.

The central element of IDEAL-2 is three further yearly follow-ups of the IDEAL cohort. At the time of the first follow-up we will enrich the cohort with additional participants from groups that were underrepresented in the original cohort.

We will link the cohort data with administrative data to obtain information about health service use. This will be supplemented by five linked studies. The programme consists of six studies in total. 

IDEAL-2 cohort, involving three further yearly follow-ups of the IDEAL cohort including new participants and data linkage – subject to NHS HRA and Scotland A Research Ethics Committee (REC) approvals.

Who can we include?

We are looking to recruit 15 participants from KMPT to the enrichment cohort. We are looking for individuals who fulfil one of the following criteria:

  • aged over 92 years
  • aged under 65 years
  • have Parkinson dementia
  • have Lewy Body dementia
  • female.

What is involved for the patients?

Patients, along with an identified carer, will be seen at home by a researcher and, if consented into the study, will be assisted in completing a questionnaire. They will then be seen one year later.

For further information please contact:

Jamie Harper
Email: jamie.harper@nhs.net
Tel: 07500 032847

http://www.idealproject.org.uk/takingpart/ideal2/

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