Adult Autism Spectrum Cohort Study

The research project aims to learn much more about the life experiences of adults with an autism spectrum disorder and their relatives.

It will collect information from adults on the autism spectrum and relatives regarding their life experiences. Participants will join the nationally-recruited cohort and will be followed up over the years and asked to update their information, to see how people's lives change.

Who can we include?

  • Adults on the autism spectrum - must be aged 16 or over
  • Relatives of those on the autism spectrum.

Who do we need to exclude?

  • Those under the age of 16.

What is involved for patients?

Individuals can consent to take part online at

After registering online, they will be invited to complete the online consent process. Alternatively, they can fill out a contact form and receive paper forms about the project.

Those taking part will then be asked to complete a questionnaire asking questions about the type of support they receive, their employment opportunities and other information about their home and daily life.

They will get followed from time to time up over the years and asked to update their information, to see how their lives change.

For further details please contact:

Hannah Herlihy
Mobile: 07880 294404
Office: 01622 427210

Or click her to complete our online form