Living with dementia

What is dementia?

According to those who are living with it, dementia is ‘life-changing, debilitating, confusing, upsetting, challenging and frustrating’.

The term dementia describes a collection of progressive diseases that affect how our brains work - often impacting on our memory, language, thinking and reasoning. However, those living with it: “Aren’t going to turn up our toes and give up. We are still interested in the world and what is going on. We want to keep active, contribute and be a valued member of the community".

Dementia Engagement and Empowerment Groups

People living with dementia come together in these groups to help make the world more dementia-friendly.

They work with us to improve the services we offer to people living with dementia through involvement in service delivery and developments, teaching, training and recruitment.

They are also active in local communities, attending Dementia Action Alliance (DAA) meetings and offering consultation to banks, schools, theatres, museums and other organisations.

The groups are part of a national network of similar groups through the Dementia Engagement and Empowerment Project (DEEP), which brings together people with dementia from across the UK to change and influence services and policies through dynamic projects such as ones on the use of language, clearer billing, signage and online with dementia diaries.

If you have used KMPT services, live with dementia and would like to know more about your local group, please get in touch using the contact details on the right hand side of this page or by completing this online form.

The groups are as follows

Forget me nots - Canterbury, Faversham, Whitstable, Herne Bay, Sandwich and villages
Memorybilia - West Kent
SUNshiners - Dover, Deal, Hythe and Folkestone
Pathfinders - Sittingbourne and surrounding areas
Phoenix: Rising above Dementia - Ashford and surrounding villages

Dementia service user envoys

KMPT has four dementia envoys, who are keen to increase public awareness of dementia and living well with dementia and contribute to the development of KMPT services by being a source of knowledge, advice and consultation.

They are all people living with dementia who are registered KMPT volunteers, supported by our Older People’s psychology.

Visit our Dementia Envoys page to find out about roles, talks the envoys have given, interviews, publications and links.

Dementia allies

Dementia Allies are people living with dementia who want to support you with your diagnosis.

After a diagnosis of dementia, it may feel like your world has been turned upside down. Many people report feeling completely alone, not knowing who or where to turn to for support.

We know what it’s like. We’ve been there and can support you by sharing our experiences of how we coped after diagnosis.

Visit our Dementia Allies page for more information.